Participate in research

Some families have found it helpful to share their stories to allow professionals to learn from their experiences, with the aim of improving the support that other bereaved families are offered. Child Bereavement UK promotes research studies which we feel are in support of the core aims of the charity, and have met rigorous ethical standards.

Current research studies

Puddle Jumping: Understanding young children's grief following the death of a sibling. Narratives from parents and educators: A continuing bonds perspective.

Deb Ravenscroft is currently undertaking a Doctorate in Education at the University of Chester. She is a Senior Lecturer in Education and teaches across a range of programmes with a particular focus on young children and families. Deb is seeking parents of a child or children in the family who are bereaved of their sibling to help her with her research. Their sibling may have died during their lifetime or before they were born. The research endeavours to understand how young siblings manage their grief following the death of a sibling. There is limited research into how young children navigate the loss of a sibling despite the significant impact it could have on this group of young children. A continuing bonds perspective explores how families develop and continue the relationship between the siblings following the bereavement. If you are interested in taking part or for more information, please see the Participant Information Sheet.

The UK Commission on Bereavement: Children and young people survey

The UK Commission on Bereavement has launched national surveys for children and young people bereaved in the last 3 years to get their view on how families, friends, schools & services can provide support. There are three surveys: There are three surveys available online for children aged 5-12, 13-15 and 16-17. The survey for 5-12 year olds also includes some questions for parents and carers. For more information on how you and/or your child can take part visit The UK Commission on Bereavement.

Supporting children and families following the death of a parent

Alex Wray, a registered nurse, and research fellow is undertaking research as part of a PhD in Medical Sciences at Hull York Medical School (HYMS) into how professionals can best support children and families following the death of a parent. As part of her research she would like to speak to bereaved children aged 10-18 years and surviving parents who are happy to share their experiences about they how they supported each other and what helped them. If you are interested in taking part, Alex can interview you at a time that suits you via Zoom or telephone. Interviews take approximately one hour. For more information please email [email protected] or phone 07423508088. You can also visit the HYMS website for further information www.hyms.ac.uk

Did you lose your mother in childbirth?

The Department of Counselling Psychology at City, University of London is looking for adult volunteers to take part in a study on the experience of having lost your mother during childbirth. You would be asked to take part in a one off 1-2-1 interview that would ask about how you have made sense of losing your mother during childbirth.
More information HERE.

Parent involvement group to help improve stillbirth care through research

A research team in Bristol is looking for parents of stillborn babies (who died at least 6 months ago) to help identify the most important aspects of care that should be measured in studies. This will involve discussing what future research should look at and developing key messages for bereaved parents.
More information HERE.

Children’s Bereavement Care and Adaptive Meaning Making in Bereaved Parents

The focus of this research is the immediate bereavement care parents experienced at the time their child died. The research endeavours to increase understanding of the unique role of bereavement care in facilitating meaning-making for bereaved parents. It is part of a Professional Doctorate in Counselling and Psychotherapy Studies / Psychological Trauma that Lesley Dougan, a BACP Accredited Counsellor, is undertaking at the University of Chester. Participants: a parent of a child who died before their 18^th birthday and where the bereavement occurred over 12 months ago; additionally, those who accessed bereavement care when their child died.
More information HERE.

COCOON Study on maternity care since the Covid-19 pandemic

The Centre of Research Excellence in Stillbirth in Australia and King’s College London are leading on a study to understand how maternity care has changed since the outbreak of COVID-19. Part of the study seeks to understand psycho-social experiences of the COVID-19 outbreak on parents who have experienced stillbirth or neonatal death during this outbreak. The researchers wish to interview parents who have experienced a late-term miscarriage, a stillbirth, or a neonatal death since the outbreak of the COVID-19 pandemic. If you would like to part in this study there is opportunity to leave your details should you want to share your experiences in an interview by taking part in an initial survey. https://www.stillbirthcre.org.au/our-research/global-research-study-maternity-care-during-covid-19

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When a baby or child has died
For children up to 11
For young people 11-18
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When a grandparent dies - the impact on children and young people

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Grief and bereavement in Gypsy and Traveller families

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Child Bereavement UK training

Child Bereavement UK designs and delivers training for professionals in health and social care, education, the emergency services and the voluntary and corporate sectors, equipping them to provide the best possible care to bereaved families.
Contact us

Contact one of the Child Bereavement UK centres or get in touch with one of our departments.
When your baby dies

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The following are suggestions to give you the confidence to talk about funerals in a way that feels right for you and your children.