Participate in research

Some families have found it helpful to share their stories to allow professionals to learn from their experiences, with the aim of improving the support that other bereaved families are offered. Child Bereavement UK promotes research studies which we feel are in support of the core aims of the charity, and have met rigorous ethical standards.

Current research studies

The UK Commission on Bereavement: Children and young people survey

The UK Commission on Bereavement has launched national surveys for children and young people bereaved in the last 3 years to get their view on how families, friends, schools & services can provide support. There are three surveys: There are three surveys available online for children aged 5-12, 13-15 and 16-17. The survey for 5-12 year olds also includes some questions for parents and carers. For more information on how you and/or your child can take part visit The UK Commission on Bereavement.

How do bereaved children and young people experience their relationships with their friends?

Maria Garfunkel is a PhD student at UCL and is currently undertaking research as part of her pilot study into bereaved children and young people’s friendships. The aim of her project is to learn more about the kind of things that children and young people found helpful or difficult following their bereavement and the ways in which friendships had an impact on their overall experience of bereavement. For this study, Maria is looking for bereaved children and young people aged 8-18 years old who are happy to share their experience. Participation will entail a single 1-2-1 interview which can be arranged at a convenient location. If your child is interested in taking part or if you would like more information visit:https://www.bereavedchildrenfriendships-research.co.uk /.This research will take place between 1 October 2021- 1 December 2021.

Supporting children and families following the death of a parent

Alex Wray, a registered nurse, and research fellow is undertaking research as part of a PhD in Medical Sciences at Hull York Medical School (HYMS) into how professionals can best support children and families following the death of a parent. As part of her research she would like to speak to bereaved children aged 10-18 years and surviving parents who are happy to share their experiences about they how they supported each other and what helped them. If you are interested in taking part, Alex can interview you at a time that suits you via Zoom or telephone. Interviews take approximately one hour. For more information please email [email protected] or phone 07423508088. You can also visit the HYMS website for further information www.hyms.ac.uk

Did you lose your mother in childbirth?

The Department of Counselling Psychology at City, University of London is looking for adult volunteers to take part in a study on the experience of having lost your mother during childbirth. You would be asked to take part in a one off 1-2-1 interview that would ask about how you have made sense of losing your mother during childbirth.
More information HERE.

Parent involvement group to help improve stillbirth care through research

A research team in Bristol is looking for parents of stillborn babies (who died at least 6 months ago) to help identify the most important aspects of care that should be measured in studies. This will involve discussing what future research should look at and developing key messages for bereaved parents.
More information HERE.

Children’s Bereavement Care and Adaptive Meaning Making in Bereaved Parents

The focus of this research is the immediate bereavement care parents experienced at the time their child died. The research endeavours to increase understanding of the unique role of bereavement care in facilitating meaning-making for bereaved parents. It is part of a Professional Doctorate in Counselling and Psychotherapy Studies / Psychological Trauma that Lesley Dougan, a BACP Accredited Counsellor, is undertaking at the University of Chester. Participants: a parent of a child who died before their 18^th birthday and where the bereavement occurred over 12 months ago; additionally, those who accessed bereavement care when their child died.
More information HERE.

COCOON Study on maternity care since the Covid-19 pandemic

The Centre of Research Excellence in Stillbirth in Australia and King’s College London are leading on a study to understand how maternity care has changed since the outbreak of COVID-19. Part of the study seeks to understand psycho-social experiences of the COVID-19 outbreak on parents who have experienced stillbirth or neonatal death during this outbreak. The researchers wish to interview parents who have experienced a late-term miscarriage, a stillbirth, or a neonatal death since the outbreak of the COVID-19 pandemic. If you would like to part in this study there is opportunity to leave your details should you want to share your experiences in an interview by taking part in an initial survey. https://www.stillbirthcre.org.au/our-research/global-research-study-maternity-care-during-covid-19

Latest

Trust and Grants Fundraiser

We are looking to recruit a Trust and Grants Fundraiser to join our team at Child Bereavement UK.
South Coast Challenge

3-4 September 2022, Devon
Yorkshire Challenge

23-24 July 2022, Yorkshire
Lake District Challenge

11/12 June 2022, Lake District

Supporting bereaved children and young people

Children and young people grieve just as much as adults but they show it in different ways. Find out how you can help them and more about child grieving.
Telling a child that someone has died

It is important to tell a child of any age when someone important in their lives has died, and ideally this is done by someone who is closest to them.
When a grandparent dies - the impact on children and young people

The death of a grandparent is often a child or young person’s first encounter with the death of someone important. Parents have a great deal to manage when their own parent or carer dies. There is the grief associated with their own loss, but also the reactions and responses of their children to the death of a grandparent.
Grieving for a child of any age

The agony of losing a child of any age is unparalleled. There is no age or point in time that makes it any easier. No parent expects to face the death of their child and no grandparent expects to lose their grandchild.
Let’s Rock & Pennfest

Volunteer with Child Bereavement UK at Let’s Rock retro festival this summer and enjoy the event for free.
Contact us

Contact one of the Child Bereavement UK centres or get in touch with one of our departments.
Children's understanding of death at different ages

Babies and young children have no understanding of the concept of death yet, long before they are able to talk, babies are likely to react to upset and changes in their environment brought about by the absence of a significant person.
When your baby dies

When a baby lives only a short time or dies before birth due to miscarriage, stillbirth or a painful decision to end the pregnancy, people may assume that the loss is not important. This is simply not the case.
Explaining funerals, burial and cremation to children

The following are suggestions to give you the confidence to talk about funerals in a way that feels right for you and your children.
Grief and bereavement in Gypsy and Traveller families

Death and bereavement are experiences common to most of us and few of us go through life without experiencing the death of someone close. Each situation is unique and how we respond to such a death is very individual.